When I was born how did they
know I had CF? My birth story is a little bit crazy & rather lengthy so in a
condensed version....I was born with 'meconoum ileus'- I did not pass the black
tar-like poop. In fact I did not have any type of bowel movement for over a
week. As you can see in the photo, I was born with a swollen stomach and frail,
tiny limbs. I also had the tube in my mouth to suck out all fluids from my
stomach until I had a movement (they didn't want anything else getting backed
up in my intestines). I had an IV in to keep me hydrated. I was moved to
the ICU for a week & eventually had my movement. I refused to
eat & a feeding tube was placed in my nose so I could get the necessary
nutrients. I was then moved to a different level of critical care for another
week. Every test in the book was being run but they all were coming back
negative or normal. Everybody was baffled because they couldn't figure out what
was wrong. The doctors had told my parents I wasn't going to live past the
first few days, but I was still here so I must be a fighter! They had no idea who they were dealing with. ;) One day my Ma
was holding me & kissed my cheek, "Oh, that tasted salty!" She said in passing & to no one in particular. One of
the blessed, angel nurses with bionic ears, overheard my Mom & asked her to
repeat what she had just said. The nurse went & grabbed my Dr. and told him
they needed to run a "sweat test" on me. (One of the two tests that
determine cystic fibrosis). They immediately began treating me as if I had CF.
I started to improve & began to stabilize. At six weeks the "sweat
test" was run, came back positive & I was officially diagnosed with cystic
fibrosis.
How did I get
CF? It's a genetic mutation...too bad it doesn't give me super powers like the
x-men. One mutation must come from the Mother & the Father. Many people
carry this gene mutation unknowingly. My parents did not know they were
carriers until I was born. I will always pass the CF gene to my children &
they will all be carriers of the CF gene. If Ric does NOT carry the CF gene,
NONE of our kids will have the disease, but all of them will be carriers. If Ric
IS a carrier of the CF gene, then there is a 75% chance our kids will have
Cystic Fibrosis. Either way, we will be happy. Yes, we all hope for & pray for healthy
babies BUT if ours do have CF it's okay. I've had a beautiful, blessed life
that has included CF. Living with CF has taught me SO many life lessons at an
early age & some lessons that I simply may never have learned without this
experience. God knows what he is doing, even if we don't quite understand it.
XX, M