Showing posts with label cystic fibrosis. Show all posts
Showing posts with label cystic fibrosis. Show all posts

Thursday, May 7, 2020

MANDIE'S MINI-DOC


Five years ago, Ric and I met Devin Supertramp. We were participating in a promo film for a local company he was shooting. We had a good time messing around and helping create fun content.

(You can peep the work we recorded then in the Mini-Doc at 03:24 ☺ )

Fast forward to December 2018, My health was really struggling. I was in the hospital with the lowest numbers - across the board - I'd ever had. The future was unknown. CF is tricky; it has a mind of it's own, no matter how much we like to think we are "controlling it." My friend, Lindsay, and my husband, Ric, decided they wanted to do something big. 

They reached out to the Supertramp YouTube Team and asked if Devin could create a video for our family, telling me story.

Devin responded, "I've actually followed Mandie's journey on Instagram and been super inspired about it for the longest time, and have kept on thinking that I should do a video telling her story, not even joking. Would be stoked to be involved telling her story. I think it's super inspiring and could help inspire a ton more people. Do you think she would be done for us telling her full story?"

Filming started in August 2019 and wrapped up February 2020.

Devin was so kind; he made the video specifically for our family as a passion project, but added it the Devin Supertramp YouTube Channel with the hope of inspiring others. The mini-doc was released, March 10. 2020.

I couldn't be happier with how it turned out. What it shares of my story; our family story, as authentic as we are. I am forever grateful my family will have this video forever. It's a gift no price can match.

I hope you enjoy.

ALMOST 30 AND FIGHTING FOR MY LIFE


Xx, 
   M


 

Thursday, March 14, 2019

GREAT STRIDES 2019




Hello everyone, my name is Lindsay and I am honored to be Sherman Army's Team Leader for this year's Great Strides Event in Tempe Arizona. 


Cystic Fibrosis (CF) is a genetic disease that approximately 1000 babies are born with every year. Although not common it is terminal, and not being common results in less awareness; less research means more life's taken early due to the disease. Thirty years ago the Cystic Fibrosis Foundation, a foundation dedicated to bettering the lives of those with CF, held their first Great Strides Fund Raiser. A fundraiser that is now the biggest fundraising event for CF. 






Just a few years ago I knew nothing about CF or Great Strides, but over the past few years, as a friend to Mandie, I have learned what CF is on an individual level. 
I have watched Mandie check in and out of hospitals, swallow a handful of pills all at once more than once a day, cough and cough and cough, do treatments, and seen her lung function levels (PFTs) rise and fall and rise again. 
We have shared happy moments and scary moments. Moments of uncertainty and moments of tears. 

Cystic fibrosis is not easy, physically or emotionally. 

Yet hope lies in the research. Research that produces life changing treatments and drugs. Treatments and drugs that make the future bright. 
When Mandie was born her life expectancy was 18. Through diligent care and new research drugs she will celebrate her thirtieth birthday this year. 
With your help, we can make an even brighter future for those living with CF and arrive at the day when CF stands for Cure Found. 





Thank you for your donation, please email your mailing address to HelloShermanArmy@gmail.com to receive a special gift of gratitude

To join as a team member: please, click this link
Walk with us April 28th in Tempe, AZ

Welcome to the team! 
Please read below for more information regarding the event: 

As part of the Sherman Army 2019 Great Strides team we want you to have the tools you need to feel confident! 
After signing up, we encourage you to set a goal of dollars to earn - remembering that each dollar gets us one step closer to a cure found. To assist you in reaching your goal, we have created a flier will all the information needed to spread awareness and encourage donations. Feel free to print the flier on your own or contact HelloShermanArmy@gmail.com to request a desired amount fliers printed and ready to go. 


We can't wait to celebrate with you as we stride closer to a cure found! 

-Lindsay L.

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